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E-Learning Program for Patient Voice Representatives
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User Survey
How important is Background Reading in preparing you for assignments as a Patient Voice Representative?
Extremely Important
Very Important
Somewhat Important
Slightly Important
Not at all Important
How important is a Face-to-Face Orientation Session in preparing you for assignments as a Patient Voice Representative?
Extremely Important
Very Important
Somewhat Important
Slightly Important
Not at all Important
How important is Meeting with Experience Patient Voice Representatives in preparing you for assignments as a Patient Voice Representative?
Extremely Important
Very Important
Somewhat Important
Slightly Important
Not at all Important
How important is Personal Mentoring in preparing you for assignments as a Patient Voice Representative?
Extremely Important
Very Important
Somewhat Important
Slightly Important
Not at all Important
How important is Systematic Training in preparing you for assignments as a Patient Voice Representative?
Extremely Important
Very Important
Somewhat Important
Slightly Important
Not at all Important
Which of the following training methods would be your first choice?
Face-to-face tutorial
Self-paced written learning materials
Self-paced online tutorial
If you are already an Active PVR: How long have you been involved?
Have not yet attended an event
Less than a year
1-2 years
3-5 years
More than 5 years
If you are already and active PVR: How satisfied are you with the preparation you received?
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Course Navigation
Marjorie Morrison: Welcome to the Patient Voice Representative E-Learning Program
How To Use This Program
Program Objectives
Learning Module 1: Advancing Patient Interests
1.0 Introduction
1.1 CCAN Overview
1.1.1 CCAN Member Council
1.1.2 CCAN Mandate & Work
1.1.3 Where Our Voice Is Heard
1.1.4 To Learn More
1.1.5 Summary & Reflections
1.2 Canada’s Cancer Care Landscape
1.2.1 Complex Systems
1.2.2 Legislation and Jurisdictions
1.2.3 The Rising Cost of Health Care
1.2.4 Competition for Health Care Dollars
1.2.5 The Rise of Advisory Committees
1.2.6 Decision-Making Inputs
1.2.7 Summary and Reflections
1.3 The Cancer “Experience Continuum”
1.3.1 A Personal Perspective
1.3.2 The Cancer Journey
1.3.3 Prevention
1.3.4 Screening
1.3.5 Diagnosis
1.3.6 Treatment
1.3.7 Survivorship
1.3.8 Palliation
1.3.9 Summary and Reflections
1.4 Facilitating Change
1.4.1 Understanding Culture in Changing the Cancer Landscape
1.4.2 Reasons for Change
1.4.3 Resistance to Change
1.4.4 Ingredients of Change
1.4.5 Tried and True Methodology
1.4.6 Summary and Reflections
1.5 Patient Voice Committee
1.5.1 The PVR Conceptual Framework
1.6 The Role of the Patient Voice Representatives
1.6.1 Definitions
1.6.1 b Definitions
1.6.2 A Pan-Canadian Voice
1.6.3 The Patient Voice Representative’s Job
1.6.4 Skills and Abilities
1.6.5 Summary and Reflections
1.7 Key Messages to be Conveyed by Patient Voice Representatives
1.7.1 The Importance of Conveying Key Messages
1.7.2 Other Important CCAN Messages
1.7.3 A Valuable Web Resource
1.7.4 Summary and Reflections
Learning Module 2 – Fundamentals of Effective Representation
2.0 Introduction
2.1 Communication Theory
2.1.1 The Importance of Communication
2.1.2 Critical Thinking is both a Set of Values and Skills
2.1.3 Four Key Critical Thinking Skills
2.1.4 Summary and Reflections
2.2 Preparing to Participate
2.2.1 Preparing for Success
2.2.2 Advice on Preparations
2.2.3 Learning and Preparing
2.2.4a Learn about the Event
2.2.4b Learn About The Event
2.2.5 Conduct Factual Research
2.2.5b Conduct Factual Research
2.2.6a Develop a Strategy
2.2.6b Develop a Strategy
2.2.7 Prepare Speaking Points and Questions
2.2.8 Recruit Co-Presenters
2.2.9 Summary and Reflections
2.3 Participating in Discussion
2.3.1 Roadblocks to Communications
2.3.2a Dealing with The Intimidation Factor
2.3.2b Dealing with the Intimidation Factor
2.3.3 Active Listening
2.3.4 Task and Relationship-Oriented Communication
2.3.5 Assertiveness
2.3.6 Effective Self-Expression
2.3.7a Understanding and Accommodating Differences
2.3.7b Understanding and Accommodating Differences
2.3.7c Understanding and Accommodating Differences
2.3.8 Summary and Reflections
2.4 Building Relationships
2.4.1 Building Relationships wIthin CCAN
2.4.2 Making Contacts at Events
2.4.3 Using Social Media
2.4.4 Summary and Reflections
2.5 Reporting and Follow-up
2.5.1 Capturing Event Proceedings
2.5.2 What Information to Capture
2.5.3a Follow-up
2.5.3b Follow-up
2.5.4 Summary and Reflections
Program Script
Acknowledgements
Learning Resources
User Survey
Video Index
Glossary
